The condition, known only as 1p21.1p13.2 x 4 duplications, means Eddison’s body has created additional genes leaving him developing slower than he should. But despite his condition, Eddison, from Derbyshire, has already landed a
After mum Lauren tagged designers on pictures of Eddison on Instagram, they started to take notice. Though Eddison is small for his age and struggles to hold his head up, he has been doing fabulous work with fashion labels and
Little Eddison has even become an ambassador for the brand. His parents are enjoying the attention he gets but also worry for his precarious future.
‘Eddison also can’t hold his own head up but as it’s so rare we’re really still unsure how his condition will affect him long term. ‘Despite all the constant worry as we don’t know what the future holds, he makes us so proud. I love seeing his little face on the designer’s website.’
As the condition is so rare, it’s not known how it will affect Eddison as he grows.