‘I might not have my normal life back’ Renown video director cries out

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Video director Kahiga Muriuki, famously known as Mushking has been in hospital after he was diagnosed with a rare nerve condition known as Miller Fisher Syndrome. However, it was later discovered that he had been diagnosed with the wrong disease.

Sharing through his Instagram account, he said that he feels like he will never recover for the condition he is currently in. He wrote; “Guess who’s back?! Well not fully (pirate patch is not a fashion statement) but all Glory to God I’m alive.

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Guess who's back?! Well not fully (pirate patch is not a fashion statement😬) but all Glory to God Im alive. I've been waiting for the right time of full recovery to send a grand thank you message for your prayers, support and financial contributions during my dire season of sickness but it seems that time is not coming soon.When I fell sick I was wrongly diagnosed with Miller Fisher Syndrome,a rare non-chronic condition when infact I have Myasthenia Gravis,a lifelong chronic neuro-muscular auto-immune disease.Their symptoms are very similar : paralysis or weakness of muscles, double vision, chronic fatigue etc but are managed with the same procedures hence why I didnt deteriorate further. I have only just recently come to terms with the fact that I might not have my normal life back -my 20/20 vision,my physical independence and my strength.However there is a surgery(thymectomy) and mild-chemotherapy (Rituximab infusion) that have 30-40% remmision rates in MG patients.Im hoping to be able to get them when Im financially ready. For now Im on inhibitors and steroids to give me strength to move and reduce the pains.Im not able to exert myself physically as before but I push myself where I can.All in all Im greatful to God for the gift of life, family, friends and well-wishers like you - this is just a phase in my journey and a setup for an amazing testimony for all of us one day.Lets continue to pray and support each other.Thank you. #myastheniagravis #survivor #healing #thankyou #Godisgoodallthetime

A post shared by Mushking🎬 (@mushking_) on

I’ve been waiting for the right time of full recovery to send a grand thank you message for your prayers, support, and financial contributions during my dire season of sickness but it seems that time is not coming soon. When I fell sick I was wrongly diagnosed with Miller Fisher Syndrome, a rare non-chronic condition when in fact I have Myasthenia Gravis, a lifelong chronic neuro-muscular auto-immune disease.

Image may contain: 1 person, text

Their symptoms are very similar: paralysis or weakness of muscles, double vision, chronic fatigue, etc but are managed with the same procedures hence why I didn’t deteriorate further. I have only just recently come to terms with the fact that I might not have my normal life back -my 20/20 vision, my physical independence, and my strength.

Image may contain: 1 person, sitting

However, there is a surgery(thymectomy) and mild-chemotherapy (Rituximab infusion) that have 30-40% remission rates in MG patients. I’m hoping to be able to get them when I’m financially ready. For now, I’m on inhibitors and steroids to give me the strength to move and reduce the pains.I’m not able to exert myself physically as before but I push myself where I can.

All in all, I’m grateful to God for the gift of life, family, friends and well-wishers like you – this is just a phase in my journey and a setup for an amazing testimony for all of us one day. Lets continue to pray and support each other.Thank you.”

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